Tuesday 23rd April 2024
RAIRDA Survey
Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)
At SRUK we are devastated to hear that a young girl, Holly Monk, has sadly died and our thoughts are with her family and friends at this time.
We understand that Raynaud's was impacting her life. Raynaud's is a common condition affecting up to 10 million people in the UK. For many it will be mild and manageable but for others the condition can be extremely debilitating, with every day tasks becoming impossible during an attack.
In severe cases of Raynaud's, drugs may be prescribed, which widen the blood vessels and reduce the frequency and severity of attacks. The drug in question, Hydroxychloroquine, is a drug prescribed to regulate activity of the immune system in autoimmune conditions, such as rheumatoid arthritis or lupus and is not prescribed directly for Raynaud's.
1 person in every 100 who has Raynaud's will go onto develop an autoimmune condition and so it is important to recognise if you have the condition and whether you are at risk. If you are concerned that you may have the condition please visit www.sruk.co.uk/testme to take a Raynaud's test.
For those who are taking medication to manage conditions, it is important to take the medication as prescribed by a health professional. If symptoms are persistent, the medication is not working for you or side effects are troublesome, please visit a GP to discuss options. We would urge anyone taking medication to not take more than the prescribed dosage as this can lead to a devastating outcome.
Tuesday 23rd April 2024
Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)
Tuesday 19th March 2024
The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2024' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!
Wednesday 28th February 2024
As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance to them.