Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Steph has been living with Raynaud's since she was a teenager
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For Caroline, a 40-year-old veterinary surgeon from Milton Keynes, the winter months can be problematic.
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Teenager Amy talks about her fight with Raynaud’s
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William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe who has Raynaud's
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Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis share the challenges of doing every-day tasks
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Share your stories of Scleroderma and Raynaud's.
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Diane's story of Secondary Raynaud's.
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Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Our Community share their personal Scleroderma stories
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Deb lived with Raynaud's for many years before being diagnosed.
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Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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Tuesday 23rd April 2024
Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)
Tuesday 19th March 2024
The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2024' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!
Wednesday 28th February 2024
As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance to them.