Personal stories - scleroderma

Stories from our community are vital in helping to raise awareness of this little-understood condition and its impact. 

Scleroderma affects people in very different ways, and no two cases are the same. As well as increasing awareness and understanding, sharing personal experiences also helps others, because these stories are an essential information resource for anyone looking for some support.

Please follow the links below to read real-life accounts from people across our community. These include their experiences of common symptoms, getting diagnosed and the impact of scleroderma on everyday life. We are incredibly grateful to everyone who has already shared their story.

Could you share your story with us? Each story is unique and whatever your experiences, we would love to hear from you. Please get in touch with us if you would like some more information about adding your voice to the conversation, and we will be very happy to help you.