Be Part of The Answer
Join SRUK’s first of its kind ‘citizen science’ study on Raynaud’s and related auto-immune condition
#BePartOfTheAnswer
TAKE OUR ONE MINUTE SYMPTOM TEST AND BE PART OF THE ANSWER
This Winter, we’re calling for a minimum of 10,000 people to spend 60 seconds taking the first step towards helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma, lupus and vasculitis.
Around one-in-six people in the UK have Raynaud's and for a small percentage of these, it may be a sign of a more complex underlying medical condition like scleroderma.
By completing the test and encouraging others to do the same, you’ll be supporting SRUK’s first of its kind ‘citizen science’ study on Raynaud’s and related auto-immune conditions. We currently know too little about the health outcomes of those living with Raynaud's but what we do know is that many of the answers to this, and those around related conditions, could start with you.
Inform Future Raynaud's Research
Take this anonymous survey, tell us about the symptoms you experience and help us further our knowledge. As a Raynaud's 'citizen scientist' you can help us feed vital insights into our future research projects.
Continue to Be Part of the Answer.
Dr Punam Krishan, NHS GP, Media Medic, Author, is supporting the campaign:
"Contributing to medical research projects doesn't have to be a complex and invasive process – mass ‘citizen science’ projects such as the ZOE COVID Symptom Tracker App showed how valuable simple health data could be in helping medical professionals to learn more about a condition and therefore offer faster diagnosis and protect lives.
With your help, we can take similar steps forward for patients living with Raynaud’s, scleroderma, and other related conditions by sparing just one minute to take SRUK’s online test. I’ve already taken the test and encourage as many people as possible to do the same. This campaign is one particularly close to my heart as my sister lives with Raynaud’s so I know just how challenging the condition can be.”
Coming Soon
The STAR App, will help you keep track of your symptoms, frequency of attacks, pain and monitor changes over time. You will be given information, and updates to help you manage your symptoms. It will also help provide vital research information to help us better understand Raynaud's.
Register your interest and we will let you know as soon as it's ready to use!
We have lots of Information about Raynaud's available to read & download
Watch or share our animation on Raynaud's
Karen's Story
“For many years I suffered with cold fingers and toes that also became numb or painful and, at times, changed colour. I was struggling to do normal, everyday activities. I eventually got a Raynaud’s diagnosis from my GP, and now take medication to manage my symptoms. I still, however, usually have a Raynaud's attack every day, which can be triggered by anything from getting in or out of the shower or a breeze on a hot day. The attack can lead to chilblains, cracked hands and swelling. I wear gloves for most of the year and layer up when I go into air-conditioned spaces like supermarkets.
I hope as many people as possible will take SRUK’s online test. If I'd known about the test in my teens, I probably wouldn't have had to wait so long for a diagnosis. Not only will it help you if you do have Raynaud’s, but it could also lead to medical breakthroughs and new treatments. All you need to do is spare one-minute. Less time than it takes to make a cup of tea!”
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See all newsThursday 14th November 2024
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