Scleroderma Awareness Month: your essential toolkit

June is Scleroderma Awareness Month, and our mission is simple. We want to educate, engage and empower more people to understand scleroderma and to know the signs to look out for. You can help us by sharing these key resources. 

This page has everything you need to raise vital awareness about scleroderma and its impact. These materials have been designed to provide accurate and reliable information, and can also help other people understand more about the condition and the many ways it affects everyday life. 

Please share these resources with family and friends and on your own social media, and with your employer or school if needed. You can also take SRUK materials to medical appointments if this would be helpful. 

Essential information about scleroderma 

These resources are designed to help everyone understand more about scleroderma. What is it, and what does it mean? You may also find these materials helpful when talking to others about your diagnosis.

    Information for employers and schools

    Our booklets can help you talk to employers, schools and colleges about scleroderma, it's impact on you or your child, and how to provide the right level of support.

    Preparing for your appointment

    This helpful guide is designed to help you get the most from each appointment and make the best use of your time you have with the doctor or nurse specialist.

    Share our video to raise awareness

    In scleroderma, early diagnosis often leads to better outcomes, so awareness is crucial. It is vital that more people become aware of the signs, and what to do next.

    By sharing this video across your own platforms, you can help to spread the message even further. The sooner someone is diagnosed the quicker they can be treated, which can make a big difference.

    Play video

    Share the signs

    Scleroderma is SO RARE that people may not realise the early signs, and 25% are waiting over three years for a diagnosis. Sharing these key symptoms could encourage someone to seek help sooner.

    About SRUK

    Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly diagnosed every year.  

    SRUK provide support and information through our online resources, our printed publications, our free helpline and support groups. We encourage conversations, ask questions and advocate on your behalf. We are the only UK charity funding essential scientific research into Scleroderma and Raynaud’s to improve diagnosis rates, treatments and quality of life. Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community. To find out more, please click here.