Thursday 21st January 2021
A member of our community has published a book! Jonathan Levitt is the author of Contemplating Comedy, which is available now. Written mainly during the first lockdown, this book is packed with humour combined with the author’s own insights, experiences and ideas, all accompanied by a collection of original cartoon illustrations
Monday 18th January 2021
Would you like to have your say on whether a treatment is made available for progressive fibrosing interstitial lung disease (PF-ILD)?
Wednesday 18th November 2020
A little change really can make a big difference. How we spend our days actually has a massive impact upon our health and wellbeing, and by making a few simple adjustments to your daily routine, you can improve your quality of life. So what would you like to change? We have everything you need.
Wednesday 21st October 2020
In the fight against coronavirus, an effective vaccination could be the game-changer that the world is waiting for. It typically takes several years to develop a new vaccine, so how close are we to finding a real vaccination for coronavirus, and how might this work to protect us?
Friday 9th October 2020
Many people are entitled to a free flu jab this year, and you may have received a letter about this. But why is this important and what are the benefits? And is there anyone who should not have the flu vaccine? We have all the answers you need.
Friday 2nd October 2020
Together with our partner organisations of RAIRDA (The Rare Autoimmune Rheumatic Diseases Alliance), we have released a joint statement in response to the recent rise in coronavirus cases. This is regarding the effect of the pandemic on the ongoing, continuing care of people with rare, autoimmune conditions, including scleroderma; as well as the issue of shielding.
Tuesday 29th September 2020
An important part of participating in a project such as this is ensuring that you understand how the collected data will be used and why community input is so valuable and fundamentally vital.
Thursday 24th September 2020
Acupuncture is an alternative treatment that comes from ancient, Chinese medicine. An acupuncturist inserts fine needles upon specific points of the body, with the aim of stimulating and balancing the flow of energy. There is some evidence that acupuncture could help to alleviate the symptoms of both Raynaud’s and scleroderma.
Wednesday 26th August 2020
Dr. Jo Daniels looks at coping strategies to help in adjusting to the new 'normal' as we resume our daily activities. Based on cognitive behavourial therapy techniques, these simple steps can help us all to feel a little bit more in control as life moves on.
Friday 21st August 2020
A team of researchers based in the USA, UK, Germany, Switzerland and Japan sought to examine the results of the SENSCIS trial to assess the safety and tolerability of nintedanib in people with SSc-ILD.
