Wednesday 5th October 2022
Having scleroderma often means living with uncertainty around how the disease will progress over time, and the effect that this could have on future quality of life. New research funded by SRUK aims to help address the impact of this ‘prognostic uncertainty’, by using indicators that will predict disease progression and ultimately improve treatment options.
Tuesday 20th September 2022
CAR T cells are an exciting and emerging therapy which have been used to treat certain cancers, giving hope to those for whom no other treatments have worked. A recent study carried out in Germany which studied patients with lupus suggests that this therapy could be of use in treating a host of autoimmune conditions including scleroderma.
Wednesday 14th September 2022
Exciting new research run by Professor Liz Walker at the University of Hull and the University of Leeds is aiming to improve oral and dental outcomes for people living with scleroderma, by improving pathways to oral care. You can now get involved in the research team’s study by filling out their short survey about your perspectives on dental and oral care in scleroderma. Find the link on this page!
Friday 9th September 2022
Do you have scleroderma and have a weakened immune system? Would you like to have your say on whether a treatment which can prevent COVID-19 infection is made available to those who have poor immune responses in response to COVID-19 vaccination? Complete our short survey to inform our response to a NICE consultation on whether this treatment should be authorised for use.
Wednesday 7th September 2022
Would you like to find out more about a new study that aims to improve how we understand and treat fibrosis?
Tuesday 9th August 2022
72 people have signed up for this new trial for people living with diffuse scleroderma and now this clinical study, to test a new investigational drug for use in Diffuse Scleroderma, is ready to start.
Monday 1st August 2022
Evusheld is an antibody treatment designed to prevent patients from contracting COVID-19, and can provide protection for immunocompromised and immunosuppressed people that haven’t mounted a proper response to the vaccine. SRUK is supporting the call for the UK Government to procure and provide Evusheld to patients in the UK. Find out about how you can help on this page.
Friday 15th July 2022
July marks six months since Scleroderma & Raynaud’s UK launched STAR, the Symptom Tracking App for Raynaud’s, which enables members of the SRUK community to track their Raynaud's attacks and directly contribute to essential scientific research into the condition. Here’s a breakdown of what we’ve learnt so far, thanks to the STAR community!
Wednesday 29th June 2022
Wednesday 29th June 2022
Georgina Foster is an Art Historian and has written this piece especially for World Scleroderma Day to celebrate the great artist Paul Klee, who she admires very much and who also had scleroderma.
