Tuesday 30th November 2021
RAIRDA survey findings on access to third dose
RAIRDA and its member charities are calling for urgent government action to address concerns about the roll-out of third primary doses for the COVID-19 vaccine.
Tuesday 30th November 2021
RAIRDA and its member charities are calling for urgent government action to address concerns about the roll-out of third primary doses for the COVID-19 vaccine.
Tuesday 30th November 2021
A new COVID-19 variant originating from South Africa is making headlines due to its large number of mutations and the risk they pose. Designated as a ‘variant of concern’ by WHO, how worried do we need to be about the Omicron variant, and what do you need to be aware of?
Thursday 4th November 2021
Yesterday, the UK’s Medicine and Health products Regulation Agency approved the world’s first ‘take at home’ COVID-19 treatment, Lagevrio – one of two antiviral treatments secured by the UK Government in October.
Thursday 21st October 2021
With autumn now firmly upon us, we are facing the onset of the winter flu season. If you have systemic sclerosis you may be at a higher risk if you catch the flu. What can you do to protect yourself?
Tuesday 19th October 2021
SRUK are pleased to announce that NICE have approved the use of Nintedanib in treating progressive fibrosing interstitial lung disease (PF-ILD)!
Friday 15th October 2021
What is stratified medicine? Stratified medicine is also known as personalised medicine and works by dividing patients within the larger group into subgroups by factors that make their condition different.
Friday 1st October 2021
: Affecting around 200 children in the UK, Juvenile Localised Scleroderma is an incredibly rare condition. Developing new treatments is challenging due to small numbers of patients. Find out how SRUK and Alder Hey are tackling this!
Friday 17th September 2021
A series of talks took place throughout the day, covering areas of research funded by SRUK, advice on symptom management, and discussions about the future. This article offers a brief overview of each talk as a taster, and in the coming months they will be made available online.
Thursday 16th September 2021
September is Pulmonary Fibrosis Awareness Month. Pulmonary fibrosis (PF) is also known as interstitial lung disease (ILD) and is the most common form of lung involvement in SSc. This can occur at any time, although early detection often leads to much better outcomes. This is Georgina’s story of living with lung disease, which has a dramatic impact upon her life.
Wednesday 1st September 2021
OCTAVE study reveals how effective COVID-19 vaccinations are in immunocompromised participants