February is Raynaud's Awareness Month.
SRUK is calling on the government to expand the Cost-of-Living Payment criteria to cover people with severe Raynaud's.
You can help by writing to your own MP, to tell them how the energy crisis is affecting many people with Raynaud's and demand more help with heating costs. By hosting a Catch up with a Cuppa, you can bring people together to raise valuable funds as well as vital awareness. And simply following our social media and sharing our posts will help us spread the message even further.
The Raynaud's Energy Campaign
This winter, 1,162 people living with Raynaud's answered our survey about the impact of rising energy costs and you told us:
- 51% of respondents are finding it even harder to pay their energy bills compared to last year.
- 68% of you would like to see the £400 Cost-of-Living payment return this year.
- 13% are having to cut back on buying food due to mounting heating costs.
We have written to the Chancellor of the Exchequer to demand help; and we will continue with our campaign. Now we need you to add your voice, by writing to your MP to demand more support for people living with Raynaud's who are struggling with rising energy costs.
How you can help
We need your support to help us raise awareness. There are lots of ways to get involved, and by hosting a Catch up, displaying our posters or simply sharing our videos and our content, you really can make a difference.
Share our content
Too many people just live with Raynaud's without knowing what it is and how they can manage the symptoms better. For roughly 300,000 of them this is an early a sign of an underlying autoimmune condition. So we don't want people to ignore it any more. Please help us keep on raising vital awareness. We have put together these videos to help.
Could you have Raynaud's?
Up to 10 million people in the UK have a form of Raynaud's and yet our research shows that nearly half of UK adults don’t know any of the signs of Raynaud’s disease.
That's why it's so important that we continue to raise awareness.
Les's story
Les lived with Raynaud's for five decades, before he was diagnosed after taking the online test.
Please share this link with your family and friends, and help us to encourage them to take the test as well. They could be affected and not even know it, but there are ways to make life easier.
Jody's story
Your stories help us to reach more people, and help them understand Raynaud's and how to manage the symptoms, and to know if they could be risk of a potentially serious underlying condition. This is Jody's story of a typical day living with Raynaud's.
Help us raise awareness
You can help us spread the word by downloading and sharing our materials. We have a wide range of publications that are all available free of charge by clicking here. Alternatively please contact us if you would like some printed copies and we will be very happy to help.
Know Raynaud's Leaflet
Know Raynaud's Poster
Download our A4 poster here. You could ask your GP surgery to put it on display.
Raynaud's Flyer
Download our handy flyer here, with lots of helpful information.
Raynaud's - getting diagnosed
The first step to getting a diagnosis is to book an appointment with your GP
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Raynaud's
All you need to know about Raynaud's, from getting diagnosed to managing symptoms
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Personal Stories - Raynaud's
Personal Raynaud's Stories from our Community
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