Wednesday 27th November 2019
Many things can impact the quality of a person’s life, especially if you are living with a long-term chronic condition like scleroderma or Raynaud’s phenomenon. There are many ways to help manage the conditions, including better nutrition and exercise.
Thursday 21st November 2019
SRUK has long recognised that detecting the conditions earlier is key to ensuring that people live longer and better lives, which is why we fund studies to improve our understanding of the early warning signs of the conditions.
Tuesday 19th November 2019
Here, we highlight some examples of research projects that have been funded by SRUK in the past which focus on improving quality of life for patients.
Tuesday 5th November 2019
Dr Tracey Frech, the director of the systemic sclerosis (SSc) clinic at the University of Utah, and Salt Lake Veterans Affair Medical Centre, focussed her talk at the Cambridge conference on gut involvement in systemic sclerosis and the importance of research in this subject area.
Wednesday 30th October 2019
The theme of Dr Voon Ong’s talk at SRUK’s Cambridge Conference in July was clinical trials in the field of emerging therapies, providing an overview of the latest news from recently completed clinical studies and of ongoing studies that show significant promise.
Friday 25th October 2019
Close to 70% of people living with systemic sclerosis develop interstitial lung disease, which often takes the form of pulmonary fibrosis. Recent research into protein inhibitors may lead to new therapeutic agents to treat pulmonary fibrosis.
Tuesday 8th October 2019
Hairdresser Maxine Jackson shares in this piece how she remains motivated to focus on her passions whilst overcoming the day-to-day challenges of scleroderma and the common misconceptions.
Friday 4th October 2019
Physiotherapy relies on a variety of techniques to help restore movement and function when someone is affected by injury, illness or disability. Physiotherapy exercises are rapidly becoming a key management approach that can be taken to limit tightening of skin, which is characteristic to all forms of scleroderma.
Tuesday 1st October 2019
Proud mum Lizzi Hooks, 38, has lived with Raynaud’s phenomenon for most of her life, following self-diagnosis at the age of 14. Lizzi has told us her story to share how she manages daily tasks when her fingers fail her.
Monday 23rd September 2019
Botox surgery is emerging as a form of treatment for Raynaud’s phenomenon, but the reasoning behind why this may work remains unclear. Research evaluating the use of Botulinum toxin type A (BoNT/A), one of the the main ingredients of Botox, has been steadily building since the early 2000s.
