Tuesday 30th October 2018

Tenascin-C: A potential driving factor of organ fibrosis

Fibrosis is often the fundamental reason of morbidity and mortality in systemic scleroderma, however there is no effective therapy to prevent this process. A new study has identified a protein that may trigger fibrosis.

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Friday 26th October 2018

SRUK launches online Raynaud’s test to aid in diagnosis

In a bid to raise awareness of Raynaud’s phenomenon (RP) and to encourage individuals to be actively involved in their own healthcare, SRUK led an initiative to develop a ‘Raynaud’s test’ on their website for the online audience.

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Monday 22nd October 2018

SRUK commits to funding a pre-clinical study to evaluate a novel and innovative therapy to treat fibrosis

Skin fibrosis can be a severe and life limiting complication of scleroderma, with a dramatic impact on quality of life. It can be progressive and painful, leading to permanent ulcers and restriction of movement. Being able to limit the progression of skin fibrosis, and ultimately, reverse the effects are a key priority for SRUK and our community.

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Wednesday 17th October 2018

Is there a better way to differentiate Primary and Secondary Raynaud’s?

A study from Japan has devised a test which researchers claim could prove whether a patient has primary or secondary Raynaud’s.

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Tuesday 9th October 2018

EULAR calls for Horizon Europe budget increase to meet citizens’ needs

The European League Against Rheumatism (EULAR) has issued a call to the European institutions together with the biomedical research community to make Horizon Europe a success for Europe’s long-term health.

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Thursday 4th October 2018

5 Physiotherapy workouts for scleroderma

Many people find physiotherapy incredibly useful in their fight against the symptoms of scleroderma. Below are some easy exercises for the areas of the body that many find the most beneficial to help manage pain and improve mobility.

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Thursday 27th September 2018

Daisy’s charity chop: 11 year old daughter raises money to support mum with scleroderma

Lucy Sephton, diagnosed with scleroderma 16 years ago, talks about how proud she is of her daughter for raising a staggering £4,388 for SRUK by chopping her hair for charity.

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Tuesday 25th September 2018

Detecting heart abnormalities earlier: SRUK funding has potential to save lives

SRUK have made a significant contribution in providing funding for this two-year pilot study, which is well underway. Initial results are promising, and the success of the study means that the implantable loop recorder can then be examined through a wider clinical study.

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Friday 21st September 2018

Examining blood flow in Scleroderma and Raynaud’s: A research study working with patients

Dr. Victoria Flower, based in Bath, is working on a new research project, fully entitled, ‘The role of Hypoxia Inducible Factor and Vascular Endothelial Growth Factor in microvascular dysfunction and fibrosis in Systemic sclerosis’, to examine factors that may be affecting blood flow in people with Scleroderma and Raynaud’s.

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Monday 17th September 2018

SRUK win consultation with top health communication agency

Scleroderma & Raynaud’s UK (SRUK) has been awarded a consultation with The Difference Collective to enhance current communications. SRUK will get the chance to pick the brains of up to 10 of the Collectives top healthcare comms experts during a free one-hour brainstorming session.

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