Tuesday 7th March 2017
The Prescription Charges Coalition has launched a survey looking at the ways in which prescription charges affect the lives of people in England with long-term conditions such as Scleroderma and Raynaud’s.
Tuesday 28th February 2017
Wednesday 22nd February 2017
Wednesday 8th February 2017
How to look after yourself when running.
Monday 9th January 2017
February 2017 was Raynaud's Awareness Month and SRUK supported it with raise your hands.
Tuesday 3rd January 2017
Dan Muscat, 49, developed systemic scleroderma in 2014, in which the skin all over his body began to harden and tighten due to the overproduction of collagen. An experimental stem-cell treatment has meant a "180-degree" turn in Dan's symptoms.
Tuesday 3rd January 2017
Raynaud’s attacks, usually triggered by the cold causing a lack of blood flow to the extremities, are often mild and manageable; however diving into cold water may cause problems.
Tuesday 13th December 2016
Monday 28th November 2016
SRUK will be supporting Rare Diseases Day February 2017.
Monday 3rd October 2016
Scleroderma is a rare disease that affects the immune system. Your body starts to attack healthy tissue and produce excess collagen, affecting the skin, joints, blood vessels, tendons and internal organs (eek!). The resulting scarring and stiffness varies in severity, but it can be disabling and even life-threatening when you have the most serious type of of scleroderma: systemic. Yep, that’s what my daughter
